Thursday, January 1, 2009

"Cancer Concierge": A Caregiver's Corner


... striving to gather tools and views that cancer caregivers can use....
Welcome to the unwelcome world of aiding your cancer-patient loved one. Sorry to see you, too, here.
Today, as a caregiver, you still have same footing. You've got one firm foot in the same, "real" world - seen, known, safe, round.

But now we caregivers also have a new, wobbling spot on the planet. You've got a new, second leg mired deep in a new, unfamiliar field. In cancer caregiving, uncertain biology tangles with mixed emotions and strange processes.

Cancer wings patient and loved ones away to a new place, with new words, worries, implements, healers, and ambiguities. It's easy to get tripped up.

are you "Home Alone," a forgotten child, in over your head, as a cancer caregiver?



You'll face hidden processes. Concerns of loved ones just under the surface of pleasant communications. Clear-and-present dangers. "Known unknowns." And new tools. But hopefully also "progress" in health and hope, not that "progress" meaning more disease.


You can help both your patient-loved-one and yourself with just-out-of-view tools and information-nuggets. With a little digging, you can mine some "cancer journey" gold. It may be a little painful and mighty ugly, but useful (just like the catheter shown below - the 3d one installed in my bride's shoulder in the 7 months since her initial cancer diagnosis).

Here, I hope to share cancer-caregiving planning, advocacy, research, and other tools. The future posts will include a variety of concepts, Web sites links, MP3s recommendations, questions, and other armanents that I've forged and found, in case you care to deploy such in your and your loved one's path.





above: thinner-pipes dual-lumens central venous catheter, for upcoming administration (infusion) of cancer-attacking radionucleotide*

* .... which yesterday replaced the fatter-piped stem cells harvesting one ... that two weeks ago replaced the original, unseen subcutaneous "porta-cath" intended for chemotherapy ... which was expected during her first month's diagnosis, but never came, mooted in a mere four weeks after its original May installation, per her soon downgrading to "stage iv" (metastatic cancer, that has escaped the breast/shoulder region)